Immune & Autoimmune Disorders

Resources in this category:

Altrusa International, Inc.
http://www.altrusa.com/Home/Default.asp

"Altrusa International is an international association of business executives and professional women and men who volunteer their energies and expertise in projects dedicated to community betterment. Altrusa is a community service organization that epouses volunteerism, serivice and fights for literacy and against AIDS." This site provides information on how to get involved with this organization, conventions occuring, publications and other helpful links.

American Academy of Allergy, Asthma and Immunology
http://www.aaaai.org/

"The American Academy of Allergy, Asthma and Immunology (AAAAI) is the largest professional medical specialty organization representing allergists, clinical immunologists, allied health professionals, and other physicians with a special interest in allergy. It was established in 1943 with the merger of the American Association for the Study of Allergy and the Association for the Study of Asthma and Allied Conditions. In 1948, the Executive Office for the Academy was established in Milwaukee, Wisconsin. At that time, membership totaled 528. Today, AAAAI membership totals more than 5,700."

American Autoimmune Related Diseases Association, Inc.
http://www.aarda.org/

"The American Autoimmune Related Diseases Association is dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity through fostering and facilitating collaboration in the areas of education, research, and patient services in an effective, ethical and efficient manner. AARDA sponsors physician's conferences, research, legislative advocacy and a national awareness campaign to bring a national focus to autoimmunity." This site also includes patient information and links to other web sites related to specific autoimmune conditions.

American Society for Histocompatibility and Immunogenetics
http://www.ashi-hla.org/

"The American Society for Histocompatibility and Immunogenetics is dedicated to optimizing patient outcome through research, education and the advancement of immunogenetic testing."

Association of Nurses in AIDS Care
http://www.anacnet.org/

ANAC is a nonprofit professional association of nurses providing health care to persons infected or affected by the Human Immunodeficiency Virus (HIV). Its goals include facilitating professional networking among health care professionals in HIV/AIDS care, providing information useful for professional continuing education, advocating for the HIV infected persons and raising social awareness of HIV/AIDS issues.

Children Affected by AIDS Foundation
http://www.caaf4kids.org/

"The mission of the Children Affected by AIDS Foundation is to make a positive difference in the lives of children infected with HIV and affected by AIDS in [the United States] by helping to meet their multifaceted direct care needs, advocating and educating on their behalf, and bringing joy and fun into their lives." Besides information about what the foundation does, the site contains links to resources about HIV/AIDS in children.

Chronic Fatigue and Immune Dysfunction Syndrome Association of America
http://www.cfids.org/

"Chronic fatigue and immune dysfunction syndrome (CFIDS), also known as chronic fatigue syndrome (CFS), is a poorly understood, debilitating and often disabling condition. The CFIDS Association of America is the leading organization dedicated to eradicating this disease. Our mission is: 'To conquer CFIDS and related disorders and to inform and empower those affected by these disorders until a cure is found.' www.cfids.org contains comprehensive information CFIDS. In addition to general information about the disease, the site provides information relevant to anyone interested in CFIDS. This includes information about the latest news about CFIDS, pediatric CFIDS, disability, public policy efforts, The CFIDS Chronicle (a bimonthly magazine for persons with CFIDS), and links to other websites of interest to persons with CFIDS and those who care for them."

Chronic Granulomatous Disease Association Inc.
http://home.socal.rr.com/cgda/

The Chronic Granulomatous Disease (CDG) Association is dedicated to the education of families, sufferers, medical professionals and the general public on the symptoms, treatment and research for CDG. CDG is a group of rare, inherited disorders of the immune system which is currently uncurable. This website contains information on symptoms and treatments of CDG, advice on living with CDG, medical research on CDG since 1966 to the present, and links to other related sources.

Lupus Foundation of America, Inc.
http://www.lupus.org/lupus/

"Service is provided by the volunteers and staff of the 94 local chapters. Through a network of more than 500 branches and support groups, the chapters provide education through information and referral services, health fairs, newsletters, publications and seminars. Chapters provide support to people with lupus, their families and friends through support group meetings, hospital visits and telephone help lines." This site gives access to downloadable, online, technical information about the disease including, a research library link to extensive recent findings and causes, symptoms and treatment. In addition, the Lupus homepage links to all the chapters of the Lupus Foundation in America and has an online calendar of lupus related events around the nation.

Myasthenia Gravis Foundation of America
http://www.myasthenia.org/

"The only national volunteer health agency dedicated solely to the fight against myasthenia gravis. The Myasthenia Gravis Foundation of America, Inc., a nonprofit organization, was established to carry out the following: "To facilitate the timely diagnosis and optimal care of individuals affected by myasthenia gravis and closely related disorders and to improve their lives through programs of patient services, public information, medical research, professional education, advocacy and patient care." The vision of the Foundation is to have a 'World Without MG.'" The MGFA web site includes:

• general information about myasthenia gravis
• links to recent research on the disorder
• news from the foundation
• listings of local chapters of the association, searchable by state
• links to other sites with information about the disorder

..and much more.

National Association of People with AIDS
http://www.napwa.org/

"NAPWA speaks for all people infected and affected by HIV in the United States.  For more than a decade, NAPWA has guided the nation toward a moral agenda to save lives, support research for a cure, and stop human suffering.  Our national presence gives voice to the often silent lives of people living with HIV, one that is collectively loud, present, and active." This site contains the latest news from the political arena, a listing of national events and an index of educational information available from NAPWA.

National Sjogren's Syndrome Association
http://sjogrens.org/

"An international non-profit organization dedicated to providing emotional support to patients and their families and educational information to both patients and health care professionals world-wide. NSSA is also committed to encourage research which will identify the cause of Sjogren's syndrome and how it can be cured." NSSA is associated with National Organization for rare disorders, National alliance for oral health and the American autoimmune and related diseases association. It has up to date technical information about diagnosis and treatment of the disease as well as information about "The man behind the syndrome" - Henrik Sjogren, M.D.

Raynaud's Foundation
http://members.aol.com/Raynauds/

"The Raynaud's Foundation is a non-profit dedicated to the promotion of education and research on Raynaud's Phenomenon and related diseases, both autoimmune and non-autoimmune." The site provides general and research information and includes "The Foundation Store" and links to other sites of interest.

Scleroderma Foundation
http://www.scleroderma.org/

The Scleroderma Foundation is a national organization that provides information to educate about Scleroderma and to support those suffering from the disease. The site provides a fact sheet, listings of literature, state-by-state listings of support groups and links to additional information. Research grant information is also included.

Leukemia and Lymphoma Society
http://www.leukemia-lymphoma.org/hm_lls

"The Leukemia and Lymphoma Society's mission is to cure leukemia and its related cancers - lymphoma, multiple myeloma and hodgkin's disease - and improve the quality of life of patients and their families; support the best researchers investigating the causes, treatment and cures for leukemia and educate health professionals about the latest advances in diagnosis and treatment." LSA has fully developed Web based connectivity to other pertinent links, downloadable current information about the disease including pamphlets in English and Spanish as well as on-location searching capability.