Pediatrics

Branches of medicine dealing with the care of infants and children and the treatment of their diseases.

Resources in this category:

Alliance for Healthy Homes
http://www.afhh.org/

"The Alliance for Healthy Homes was founded in 1990 as the Alliance To End Childhood Lead Poisoning. The Alliance for Healthy Homes works to protect children from lead and other home environmental health hazards. A national, non-profit public interest organization, the Alliance advocates for policy solutions and builds the capacity of communities to prevent in-home hazards from harming the health of children, their families, and all residents."

The American Academy of Child and Adolescent Psychiatry
http://www.aacap.org/

"For many years, the Academy has been trying to help its members increase their knowledge and skill in the treatment of mental illness of children and their families throughout the United States and now throughout the world. We have always been working hard to increase the level of knowledge and the level of expertise to prevent mental illness in children wherever they live." This site provides lins to information regarding public education, clinical practices, membership, research, national affairs, directories and mailing lists. You can access the site in English or in Spanish.

American Academy of Pediatric Dentistry
http://www.aapd.org/

"The American Academy of Pediatric Dentistry is the professional organization whose dentist members are specifically trained to provide both primary and comprehensive preventive and therapeutic oral health care for infants, children, adolescents, and patients with special health care needs." Website includes information for members, plus special sections for parents and kids.

The American Academy of Pediatrics
http://www.aap.org/

"A voice for children for more than 60 years, the American Academy of Pediatrics (AAP) is an organization of 50,000 pediatricians dedicated to the health, safety and well-being of infants, children, adolescents and young adults. The AAP welcomes the opportunity to extend distribution for our pediatric messages via electronic publishing on the Internet. We are committed to increasing services and enhancing the quality of information available through this medium. Whether you are a parent, a pediatrician, a health professional, a member of the media, or anyone interested in child and adolescent health issues, please check back with us from time to time as we grow and attempt to serve you better." This site provides links to information regarding membership, policy, publications (including "Pediatrics", the peer-reviewed journal of the AAP),a referral service, a resource guide, immunization schedules and facts,contact information and related sites.

American Hyperlexia Association
http://www.hyperlexia.org/

The American Hyperlexia Association (AHA) is a non-profit organization dedicated to the identification of hyperlexia (a language disorder), the promotion of effective teaching techniques, and education of the general public. This website contains information about the symptoms and treatments of hyperlexia, catalog of AHA resources, on-line 'toolkit' of advice for parents, connection to the hyperlexia listserv and links to related sites.

American Juvenile Arthritis Organization
http://www.arthritis.org/communities/juvenile_arthritis/abou...

The AJAO's mission is "to serve as an advocate for, and work to improve the quality of life for children with rheumatic diseases and their families, specifically by working toward improved medical care, providing collective and individual advocacy, stimulating research and providing education and support". This site contains information on juvenile arthritis, the lastest treatment options, registration for summer camps, and strategies for dealing with teachers.

Association for Children with Down Syndrome
http://www.acds.org/

"The Association for Children with Down Syndrome offers educational, therapeutic, behavioral and health-related services to persons with Down Syndrome and their families. Services include pre- and post-natal emotional support for new parents. Social services include, parent education, a community education outreach program and parent advocacy. The early intervention program is designed to optimize each child's ability to become a functioning member of society." ACDS is a non-profit organization and is affiliated with many of the official American Down Syndrome organizations. This is a very good Web resource with many links in the United States as well as more than 60 links all over the world including access to the Down Syndrome listserv and newsgroup. The Information is available in three languages English, German and French.

Association of Camp Nurses
http://www.campnurse.org/aboutacn/index.html

"The Association of Camp Nurses (ACN) is a professional nursing organization established to promote and develop the practice of camp nursing for a healthy camp community. The organization is volunteer-driven by nurses who are committed to developing camp practice and working to provide healthy camp communities. " Information on relevant research, professional forums and meetings as well as job opportunities is provided.

Association of Pediatric Oncology Nurses
http://www.apon.org/i4a/pages/index.cfm?pageid=1

APON is "the leading professional organization for registered nurses caring for children and adolescents with cancer and their families. " Through its website the association provides information about certification, continuing educaiton and research in the field of pediatric oncology.

Battens Disease Support and Research Association
http://www.bdsra.org/

The Battens Disease Support and Research Association (BDSRA) is "an international support and research networking organization for families of children and young adults with an inherited neurological degenerative disorder known as Batten Disease." This website contains a full description of BDSRA, list of services and local chapters of the BDSRA, the latest news on BDSRA research and treatment, and links to related websites.

British Society of Paediatric Dentistry
http://www.bspd.co.uk/

"The national society specifically concerned with the oral health of children in the UK. It aims to improve oral health in children and encourage the highest standards of clinical care." Website includes sections with information for memebrs and for the public.

Candlelighters Childhood Cancer Foundation
http://www.candlelighters.org/

"CCCF is an international, nonprofit, tax-exempt organization. Our mission is to educate, support, serve, and advocate for families of children of cancer, survivors of childhood cancer, and the professionals who care for them. We are the recognized leader among foundations in the field of pediatric cancer, and the only organization focused on a cooperative effort by parents and professionals." This site contains information regarding support groups, current workshops and conferences, current research studies, and a list of available resources.

CDGS Family Network, Inc.
http://www.cdgs.com/

"The CDGS Family Network, Inc. is a non-profit international organization founded by parents seeking information and support for a Carbohydrate-Deficient Glycoprotein Syndrome. We exchange information with families and physicians, locate new families and raise awareness among the medical community." This site contains the CDG Parent Forum, articles on symptoms, diagnosis and treatment of CDG, the latest reserach findings, a glossary of terms, and links to related sites.

CHARGE Syndrome Foundation, Inc.
http://www.chargesyndrome.org/

The CHARGE Foundation Foundation offers booklets, newsletter, support contacts, information and referrals to parents of children afflicted with CHARGE Syndrome. This site contains a detailed definition of CHARGE Syndrome, on-line reference list, list of resources offered by the CHARGE Foundation, and links to other related sites.

Children Affected by AIDS Foundation
http://www.caaf4kids.org/

"The mission of the Children Affected by AIDS Foundation is to make a positive difference in the lives of children infected with HIV and affected by AIDS in [the United States] by helping to meet their multifaceted direct care needs, advocating and educating on their behalf, and bringing joy and fun into their lives." Besides information about what the foundation does, the site contains links to resources about HIV/AIDS in children.

Children's Liver Alliance
http://www.kinsey.id.au/liverkids/

The Children's Liver Alliance (CLA) is also known as Biliary Atresia & Liver Transplant Network Inc. (BALT). CLA "is the largest pediatric liver organization worldwide dedicated to empowering the hearts and minds of children with liver disease , their families and the medical professionals who care for them. Originally created for those afflicted with Biliary Atresia , BALT now serves those touched by Alagille's Syndrome, Alpha-1 Antitrypsin, Cystic Fibrosis, Galactosemia, Glycogen Storage Diseases, Neonatal Hepatitis, Tyrosinemia, Wilson's Disease and many other pediatric liver diseases." This site contains a description of CLA's services, free membership form, "The Biliary Tree" newsletter, links to information about liver transplants, a links to pediatric hospitals in the USA, and links to "Living Related Liver Transplant Centers" in the USA.

CureSearch
http://www.curesearch.org/

CureSearch is a collaboration between the National Childhood Cancer Foundation and the Children's Oncology Group and details their activities in the treatment and prevention of childhood cancer. The site includes facts and research information for parents and families, patients, and healthcare professionals.

International Childbirth Education Association
http://www.icea.org/

"Family-centered maternity care is ICEA's primary goal and the basis of ICEA philosophy." Provides professional certification programs, training and continuing education programs, and quality educational resources for childbirth educators. Holds annual international convention. Over 7,000 members from 42 countries.

International Children's Anophthalmia Network
http://www.ioi.com/ican/

"Ican (International Children's Anophthalmia Network) is a parent support group for families with a child with anophthalmia or microphthalmia (the absence of the globe and ocular tissue from the eye orbit)". This site contains an explanation of anophthalmia, connections to other parents and children with anophthalmia, the latest research on prosthetic eyes and genetic treatments, and issues of the ICAN family newsletter, The Conformer.

The KidsWish Foundation
http://www.kidswish.org/

"The KidsWish Foundation is a not for profit organization that grants wishes to children up to the age of 19 that have a terminal or life threatening illness or have a socially or economically deprived background. We are very excited about our World Wide Web presence and hope that this site will generate a greater interest in our organization. The KidsWish Foundation is in its early stages of development and we feel that the Internet is a prime place to let people all over the world know what we do ...why we do it ...and how you can help." This site provides links to information regarding contributions, mission, searching, questions and answers, and current cases.

The MAGIC Foundation
http://www.magicfoundation.org/www

The MAGIC Foundation is a national nonprofit organization dedicated to help children whose physical growth is affected by a medical problem. The main objectives of MAGIC are to assist the families of afflicted children and to create public education in the area of children's growth. This site provides information on Precocious Puberty, Congenital Adrenal Hyperplasia, McCune Albright Syndrome, Growth Hormone Deficiency, Turner's Syndrome, and Russell-Silver Syndrome. The Magic Foundation provides educational tools, newsletter, support groups, pen pals, parent help line and public awareness programs. The site also contains links to organizations, hospitals, medical specialists and resources for financial aid.

Make-A-Wish Foundation of America
http://www.makeawish.org/

This nonprofit organization grants special wishes for children under the age of eighteen who have life-threatening illnesses. It has more than 13,000 volunteers and 82 chapters throughout the country. Since its founding in 1980, the organization has granted 50,000 wishes. Wishes take the form of dream vacations, introductions to famous people or other desires.

MUMS: National Parent-to-Parent Network
http://www.netnet.net/mums/

MUMS is a non-profit organization dedicated to providing support to parents and caregivers or disabled children by creating a networking system that matches parents of children with similar illnesses together. This website contains a description of the MUMS networking system, information on joining the network, on-line copies of the MUMS newsletter, lists of local support groups for parents and links to related websites.

The National Pediculosis Association
http://www.headlice.org/

"The mission of the the National Pediculosis Association, Inc.sm (NPA) is to protect children from the misuse and abuse of potentially harmful lice and scabies pesticidal treatments. As part of its mission, the NPA works to encourage our nation's health and child care professionals to adopt standardized head lice management programs. We see this effort as a way of encouraging parents to accept their role in keeping their children lice-free while learning how to treat their children safely when lice unfortunately do occur. Moreover, an encounter with pediculosis provides an early opportunity to teach children responsible health behaviors --- lessons that become valuable as children mature into a world full of other behavioral health threats. Communities that promote head lice prevention programs demonstrate a commitment to health and wellness." Site includes membership information, news and FAQs about lice and scabbies.

National Vaccine Information Center
http://www.909shot.com/

"The National Vaccine Information Center (NVIC) operated by Dissatisfied Parents Together (DPT) is a national, non-profit educational organization advocating reformation of the mass vaccination system. NVIC is dedicated to the prevention of vaccine injuries and deaths through public education. NVIC provides assistance to parents whose children have suffered vaccine reactions; promotes research to evaluate vaccine safety and effectiveness; and monitors vaccine research, development, policymaking and legislation. NVIC supports the right of citizens to exercise informed consent and make educated, independent vaccination decisions for themselves and their children." This website contains sample vaccine reaction stories, information on various vaccines, an article on the connection between autism and vaccinations, descriptions of ongoing research, membership information and links to other related sites.

Parents Helping Parents
http://www.php.com/

Parents Helping Parents (PHP) "is a parent-directed family resource center (PDFRC) serving children with special needs, their families and the professionals who serve them." This website contains a chat room for parents and professionals, special needs resource directory, support and information groups, monthly calendar of events, information on assistive technology, special needs library and links to related sites.

Prader-Willi Syndrome Association
http://www.pwsausa.org/

"Prader-Willi Syndrome Association (PWSA) is dedicated to serving individuals affected by Prader-Willi Syndrome (PWS), their families, and interested professionals by providing information, education, and support services." This website provides facts on symptoms and treatment, diagnosistic criteria, recent publications, parent network, chat rooms, index of PWSA publications, and links to related sites.

Mastocytosis Society, Inc.
http://www.mastocytosis.com/

The Mastocytosis Society, Inc. is an international, non-profit organization dedicated to the self-help of sufferers of mastocytosis, a proliferation of Mast Cells in the skin and organs. This website contains issues of the Mastocystosis Chronicles, the Mastocytosis Society Chat Line, FAQ section, e-mail discussion group, question and answer page, resource library, photo gallery and links to other websites.

The Society for Adolescent Medicine
http://www.adolescenthealth.org/

"The Society for Adolescent Medicine promotes the development, synthesis, and dissemination of scientific and scholarly knowledge unique to the health needs of adolescents." The organization provides a forum to discuss teaching and research in the field through conferences and publishings in its publication, the Journal of Adolescent Health.

This site provides information about the organization including links to its publications and position papers from the journal, continuing education information, and listserv subscription information.

The Triplet Connection
http://www.tripletconnection.org/

"The Triplet Connection, a non-profit, tax exempt organization, is a "Network of Caringand Sharing" for multiple-birth families. It provides vital information to families who are expecting triplets, quadruplets, quintuplets or more, as well as encouragement, resources, and networking opportunities for families who are parents of larger multiples." This website contains publications for expectant mothers, a newsletter, support group "Tender Hearts" for those who have lost one or more children in a multiple birth, Q&A on multiple birth and links to related sites.