Since its publication in 2006, the case of Ashley X has become highly publicized and a source of discussion among not only medical professionals and ethics committees, but also the general public. The reason for such controversy is due to the medical interventions requested by the patient’s parents in order to make caring for their daughter with severe encephalopathy easier and to supposedly create a better quality of life for Ashley. Ashley’s cognitive abilities will never allow her to be able to eat on her own, make voluntary movements, and communicate more than showing basic happiness and discomfort. The medical interventions she underwent after beginning early puberty at the age of six and a half includes the removal of breast buds to prevent breast discomfort, a hysterectomy in order to avoid the distress caused by menstruation as well …show more content…
After a medical ethics committee met and discussed the case and reported back to the doctor, the doctor proceeded with the interventions as the parents wished (citation). However, in contrast to the ethics committee and the doctors involved, Dr. Leon Cass, who was previously the chairman of the President’s Council of Bioethics and also the author of “The End of Medicine and the Pursuit of Health,” would disagree with this decision and his view would assert that it is entirely unethical for parents to modify the bodies of their severely disabled female children. According to Dr. Cass’s argument in chapter six of his book Toward a More Natural Science, his view of medicine would strongly disagree with the medical interventions performed on Ashley. To begin, Dr. Cass claims that one of the false goals of medicine is “’pleasure’- that is, gratifying or
Katherine Collier, 54, of Mt. Pleasant was arrested Sunday, March the 13, for driving under the influence. According to the Maury County Sherriff's Department report, Collier had been swerving in and out of her lane. After being asked to step out of her vehicle she told the officer that she was the City Manager and asked if he was trying to frame her, to which he responded by saying that he did not know who she was outside of that interaction. Collier then said "That's the deal, that's what's going on, but okay."
Throughout the Rebecca Skloot’s book, The Immortal Life of Henrietta Lacks, she described her investigation into the life of Henrietta Lacks, her immortal cell line, the ethical violations surrounding her case, as well as the major contributions to modern medicine and research her case provided. During the time of Henrietta’s treatment, both medical and research ethics were quite different; many values such as autonomy, justice, and beneficence were not as enforced, and were applied differently throughout different institutions and individuals of different demographics. Though investigating her case and other important cases surrounding the use of HeLa cells, Skloot acknowledges the unethical circumstances which filled Henrietta’s case and
Compared to the Lacks family, the Lacks knew their mother didn’t give consent for them to be using her cells for research. Skloot gives this example to the readers to compare both victims and their families suffered from misuse of informed consent. Even though this happen to the Henrietta in the 1950s, John situation is a little more current in time, it
This private law case describes the reaction of parents awaiting the arrival of their child, only to later find out that the sperm donor, was diagnosed with several mental disorderos. This is a private law case because the 10 families sued the company Xytex for providing inaccurate information from their donor. Aggeles, their donor, claimed to be a doctor, healthy and as smart as Einstein which obviously was not the case. Providing sperm for 36 children, which all could possibly carry the gene of a mental disorder was not something these parents signed up for. Xytex claimed that they aware parents that they do not verify donors background information.
The information about HeLa cells brought great shock and distress to the family, which unfortunately was never completely resolved till this day. In the end of the book (Afterward), the author explains
Henrietta Lacks, the “Patient” HeLa cells made history beyond polio vaccines and outer space experiments. In Rebecca Skloot’s bestseller, “The Immortal Life of Henrietta Lacks,” HeLa cells went beyond just the successful research, cures, and treatments - they told the story of the Lacks family, and the unethical behaviors in the medical field of the 1950s. Henrietta Lacks was treated as a research subject, rather than just as a patient. Her physicians unethically withheld information relating to informed consent, and uses of her biospecimen, while sharing her private information. They ignored her rights of voluntary choice, disrespected her confidentiality, and lacked communication with both her, and her family, discriminating against her race.
Skloot brings attention to the lack of informed consent and the exploitation of marginalized populations in medical research. The story of Henrietta Lacks and her HeLa cells illustrates the ways in which individuals can be reduced to mere resources for scientific progress, without proper acknowledgement or compensation for their contributions. Skloot's book also highlights the importance of acknowledging the humanity and dignity of individuals who have been used for medical research. This is particularly relevant when dealing with marginalized communities, who have historically been exploited and mistreated in medical research. By bringing these issues to light, Skloot raises important questions about the responsibility of the medical community to prioritize the well-being and dignity of all individuals.
But, like the jury said that the cancellation of the operation had the effect of shorting the child’s life, in which Phillips took the responsibility of trying to cure
In modern society, most depend on the opinion of a trained healthcare professional to ensure a solution to an issue. But what does one do when the patient has no understanding of the potential harm and side effects caused? Henrietta Lacks, a black woman of low social status, faced the trials of cervical cancer without providing informed consent, or the “legal rules that prescribe behaviors for physicians and other healthcare professionals.” If Lacks had not been a crusader in informed consent, then the legacy of patient awareness would not exist today. Lacks’ story takes place in Baltimore, Maryland when she checks into Johns Hopkins Hospital, to address a pain in her lower abdomen.
Despite her family’s multiple health issues , they could not even afford health insurance. The study suggests that although it is still flawed to a certain extent, the informed consent process has substantially improved. Only 5.9% of the participants believed that they were not given enough information before deciding to participate. In Henrietta’s time, it was legal for doctors to take her cells and use them for research without her knowledge. Today, consent is required if the donor’s name is attached.
Through the bioethics program at Columbia University, I intend to further investigate a few areas of interest. Surgical ethics is a significant area of interest and holds importance to me. I am interested in investigating the ethics of conducting research on the decisional capacity of patients who have
After reading this case I was terribly shocked about the fact that something like this could happen in our medical history. I couldn’t believe how a patient could be neglected so much. Based on the material that we have learned the lack of ethical theory of deontology in Dr. Evan was disturbing. As a doctor Dr. Evan’s role is to care for patients, keep them away from harm and prolong their life. Though in the trial he stated as if he didn’t care.
The doctors failed to use a properly consenting patient, neglected Charlie’s emotional state, and failed to conduct proper research. If Charlie had a caretaker who could give consent on his behalf, similar to a minor, an operation of this sort could be ethical. Moreover, it could be ethical if the doctors’ research and further develop their theory before using a human test subject, and pay close attention to Charlie’s emotional and mental health. However, Charlie’s operation was performed without these precautions and guidelines, and he suffers greatly in the
An essential part of modern society relied on trust, especially the trust of doctors and scientists. People had the right to make an informed decision about their bodies and body parts. People had a right to their body parts, both attached and cell samples collected by doctors. The actions that the medical professions made will continue to affect future generations in both positive and negative ways. In the contemporary biographical novel, the Immortal Life of Henrietta Lacks, Rebecca Skloot used logical opinions to argue about the importance of consent to reveal the lack of morality from those in the medical field which continues to persist today.
Doctor Myrick attempts to find pleasure in the heart breaking injury of paralysis through the slight chance he as found of curing it. Because of his chance of curing paralysis, Myrick illegally uses test subjects against their will to test his cell growing process in which eventually kills his subjects because it is not a properly thought out protocol following procedure. Doctor Myrick goes against utilitarianism in this situation because he does not follow the third tenet of Utilitarianism, which is the viewpoint of “a disinterested and benevolent spectator”. He does this when he makes the decision for the test subjects instead of testing the procedure for the goodwill of all the people involved in the situation. In order to make the proper