Autism Research Advantages And Disadvantages

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40 % have mentioned difficulties in understanding the nature of study while 40 % found difficulties in understanding the Research objective. 30% of parents / guardians lack knowledge about autism and even if they are aware of a diagnosis, they have very marginal knowledge about autism.
100 % of parents / guardians have expressed the necessity for an adequate risk- benefit ratio which the research work must ensure. Though the consent form mentions about the research being observation based study, yet only 40% of the parents / guardians mentioned that it is an advantage. They are apprehensive of any negative impact of the research process on the child as a result of participation, thus believing in presumed harm. 60 % were apprehensive of signing
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However, the researcher nor the special education centre can coerce the participant / parents / guardians to participate in the research by means of threat or negative outcome.
4.4 Benefits and risks of study participation
The Helsinki Declaration of WMA, 2000 states that ‘at the end of the trial, every participant should be assured of access to the best proven prophylactic, diagnostic and therapeutic methods identified by the study.’ However, it also notes that benefit may be indirect, that is, to the community rather than direct benefit to the participant. Indirect benefit could be ‘improving living conditions, establishing counseling centres, clinics or schools and giving education on maintaining good health practices.’

The researcher needs to ensure that potential benefits and risks are reasonably balanced and risks are minimized. Risks to participants could be:
• Inconvenience to the participant
• May not have direct benefit
• Disruption of normal / daily academic
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5.1 Ethical justification and scientific validity
The study recommends that a general sensitization of society towards research is needed. Research on autism is very crucial for understanding the condition and bringing out better management of autism. The parents / guardians / society should welcome research and benefits, direct or indirect, should be an accepted outcome. Moreover, spread of knowledge about ethical norms in research on human subjects in the society is very crucial. Many researchers and special educators lack awareness about ethics in research in human subjects A balance between the sensitization and knowledge will substantially enhance research.

Awareness should extended in the following areas:
• Awareness about ethical norms in research on human subjects (Parents, Educators & Education Centers)
• Have professional competence to work with autistic children
• Respect the needs of the
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