Overview
In 2002, The World Health Organization (WHO) had go into detail about palliative care definition. It states,
Palliative care is an approach which improve the quality of life of patients and their families facing the problem associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical psychosocial, and spiritual. Palliative care :
• Provides relief from pain and other distressing symptoms
• Affirms life and regards dying as a normal process
• Inteds neither to hasten or postpone death
• Integrates the psychology and spiritual aspects of patient care
• Offers a support system to help patients
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In Southeast Asia, Malaysia , Indonesia and Philippines were developed in year 1990 – 94.
Palliatiave care first started in Malaysia in 1991, and since then many government and nongovernment organization showed their interest in the field and start to develop more services.
Malaysia was the third country that develop Palliative care after Indonesia and Philippines.
A further step was taken in 2006 when palliative medicine became a specialty and Selayang
Hospital was recognized as the main centre for palliative care development within the
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Until now Palliative care is not yet a societal issue.
The Ministry of Health and hospital societies should support more activism and information on
Palliative Care.
Dr Oo Loo Chan as a medical director of Charis Hospice in Penang, one of Malaysia’s most recently founded palliative care NGOs in 2004 state that the relationship between palliative care and the country’s public health system is the major issue. Palliative care is still seen as not an important issue and majority people thinks it is an outside of the main health care system.
Because of that, we have to work hard to bring about paradigm shift in thinking. The fact that palliative care is not seen as part of the main health care system means there are limited number of personal who want to come into this line of work.
Furthermore, even though the important of palliative care has been alert, yet there is no palliative care course or curriculum in medical or nursing University. Many non-specialist and volunteer will developed by applying palliative care curriculum in medical. The activity of NGO programmes have make an examination and reveal that the palliative care services rely on
The time of life we call dying is an extremely difficult part of the life cycle, but a normal part," says palliative-care physician Ira Byock, author of Dying Well. "The nature of it isn't medical, it's experiential. " My grandfather had stage 4 lung cancer with metastatic to liver . Only palliative care advised by doctors. He was an strong personality .He loved all his grand kids too much.
The services provided by Hospice are emotional support, medical services and spiritual resources for people who are in their last stage of a serious illness. Family members are not forgotten as services are provided to them for managing practical details and emotional challenges of caring for someone who is dying. The loved one that comes to Hospice is usually within the life expectancy of 6 months. BBH uses a team approach to provide professional services to provide individualized care to the client. The health care team includes attending physician, the registered nurse, hospice aides, social workers, the hospice chaplain, music therapist, trained volunteers and
They areinvolved in providing palliative care,into a system of medical care that emphasizes palliation and psychosocial support of patients diagnosed with a life-limiting illness, through professional nursing or other therapeutic services, such as physical therapy, home health aides, nurse assistants, medical social work, nutritionist services, or personal care
When a patient is at the end of life it is very important to value the patients self dignity and their decisions at the mere end of their lives. The end of life care is to relieve the weight of the patient 's shoulders physically and mentally. I approve of end of life caring. Basic end of life care is summarized by improving the care of quality of life and dignity of the ill person. The important themes to good ethics of end of life care is a combination of human rights,respect,dignified care,and privacy.
It could also be that there has been a lack of support from family when a death/dying has occurred and this could have left a negative impact on an individual. Or maybe somebody hasn’t had family/friends to guide and support them through difficult periods. 2.1 - Explain the aims and principles of end of life care The aims and principles of end of life care would be to ensure that the individual’s views and wishes are being followed and respected. This would be where we work together with the individual and their family members to assure that the dying process goes as gently and get to live comfortably till they pass.
This highlights the importance of education and understanding of end-of-life options, as it can help reduce stigma and increase empathy towards those who are facing terminal illnesses. It also emphasizes the need for open and honest conversations around death and dying, as well as the ethical and moral considerations surrounding
Hospice and palliative care can be easily intertwined; they are both concerned with promoting comfort and relieving patient pain. Hospice and palliative care, however, are different in some aspects. Patients who receive hospice care are nearing the end of their lives and there is no effort to cure their disease; the goal is to provide pain relief, a sense of belonging from family and friends if desired, support through the dying stages, and to assure that the person is able to die with dignity. Palliative care is also focused on reducing discomfort; however, the patient receiving care can be at any stage in their disease. Additionally, palliative care can also be administered during a time when a patient is receiving treatment to cure their illness.
1 Outline the factors that can affect an individual’s views on death and dying •Social •Cultural •Religious •Spiritual 2 Outline the factors that can affect own views on death and dying •Emotional •Past experience •Psychological •Religious •Social •Spiritual 3 Outline how the factors relating to views on death and dying can impact on practice Current and previous professional roles and responsibilities and past; boundaries limited by legal and ethical issues; professional codes of practice - internal and national; impact of management and leadership; input from other team members and workers. 4 Define how attitudes of others may influence an individual’s choices around death and dying different models of nursing care; person-centred
In all my experiences as a nurse, I’ve realized the importance of communication, providing holistic care to an individual and empowering them with the knowledge to manage their health. When an illness strikes a person, it affects not just his body, but also his mind and spirit. The art of communication is invaluable to patient interaction and establishing a therapeutic nurse-patient relationship, that facilitate coping mechanisms for patients, moreover it prepared myself as a nurse to meet their individual needs. Furthermore, there is at the moment an insurmountable demand for survivorship care as a result of the advancement in technology and medicine, which made living beyond life expectancy possible for increasingly more people. Living after cancer treatment is not free of complications as there are acute and chronic side effects of treatment that requires constant monitoring and attention, and this information spurred me to shift my focus from palliative to survivorship care.
SDLA 4: Activity 1 Palliative care continues to evolve in providing better end-of-life care and so does nursing care. Thus, nursing practice is enhanced to satisfy the demand of the palliative care. A nurse provides complex care and fulfils the needs of the patients. Nursing involves in caring work, which focus on patient experiencing agony in palliative and haematological cancer care. Nurses worked in a taxing environment, that can be highly stressful, and often they experience physical, psychological and spiritual exhaustion.
An Integrative Review. JAN Journal of Advanced Nursing, 1744. Karlsson, M. B.-F. (2015). A Qualitative Metasynthesis From Nurses’ Perspective When Dealing With Ethical Dilemmas and Ethical Problems in End-of-Life Care. International Journal for Human Caring, 40-48.
In “ How Doctor Die”, an article written by Ken Murray, is about the way to prolong the life of doctors and patients when they have terminal illness. In most cases, a doctor home went, closed their practice and never set foot in a hospital again. They want to have more time with family. Doctor is a person treat the desease and save the patients; however, when they have illness, they are also like other patients. They can meet a difficulty with their patients in treament,but they feel easy when they are a patient.
(2008) Preliminary report of a palliative care and case management project in an emergency department for chronically ill elderly patients. Journal of Urban Health, 85 (3), 443-51. Montefiore Medical Center created a program in their Emergency Department that identified chronically ill, elderly patients. They found that these patients were more likely to need palliative or home care, and later on hospice care. This preliminary report and case management pilot project made connecting patients to such services and ultimately allowing patients far more accessible options to these types of care.
The theory fails to mention the young adult patient that is dying maybe from auto collision or other incidences that subjected them to the dying stage of their life who may not have thought of making an end of life decision. The situation that put care team in a dilemma and may delay care or prolong needed care than necessary. Ruland and Moore was derived from doctoral theory course in the accumulations of empirical knowledge, clinical practice knowledge and synthesized knowledge which did not address the lower level of educators that are still scared to talk to patients about living will or who is yet to understand how to help a patient in an acute situation with a living will. Miller, B. (2017) states that physicians and nurses report discomfort in discussing end of life care with the patient from other cultures. He further expresses that the contributing factor to their inability to talk about the end of life care is lack of knowledge among practicing nurses regarding their role in educating patients (Miller,
' Practitioner can play a role in improving the quality of life of a terminally-ill patient in both pharmacological aspects and non-pharmacological aspects. After all, what remains in a patient 's mind is the care and love given by practitioner, not the medical information. Something as simple as a warm-hearted pat on the shoulder or a word of assurance can enlighten their day. If we can treat every patient wholeheartedly, as if he/ she is our friend, it makes significant difference in patient life. Conclusion Hepler & Strand define pharmaceutical care as the responsible provision of medicine therapy for the purpose of improving a patient