Down Syndrome Philippines
"He's chromosomally enhanced, and he enhances my life."
—Michelle Sullivan (2014)
Quoted from a mother of a child with Down Syndrome, it sounded peaceful and serene. But there is beyond a mother’s view, a view wider through a familial perspective. And that is what this research is bounded.
In the Philippines, one in every eight hundred babies born has Down syndrome or around 1,875 cases a year in a population of 1.5-million live births, as reported by The Manila Times (2014). Since the statistics have indicated such number of families affected, it is factual that the family experiences, family roles, and social support are important in the development of an individual having Down Syndrome, as stated by Gayman (2014).
It is given
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It is easy for them to be ignored. This research works out for that 1 out of 800 babies and words out that small number to raise awareness for these children and their …show more content…
Most of the studies done in the Philippines were more of further researches of the causes and alternative treatments but lacks on how Filipino families take care of their children with Down syndrome. This study fills the gap by focusing on the experiences of Filipino families—both parents and siblings—in taking care of the children with Down syndrome in the area of their challenges, coping skills and personal insights as a family. The study explores the following questions: (1) What are the perspectives of Filipino families about Down Syndrome? (2) What are the challenges do Filipino families have to overcome and deal with? (3) What are the positive moments they experienced in looking after the family member with Down syndrome? (4) What are the coping strategies employed by Filipino families together with the children with Down Syndrome in terms of addressing the family’s psychological, physical, social, and psycho-spiritual needs? And (5) what are some of the insights of the family members about their experiences in caring for the child with Down Syndrome to serve as an encouragement and inspiration to
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