Henrietta Lacks Informed Consent Essay
In the study “Assessing the quality of informed consent in a resource-limited setting: A cross-sectional study,” researchers investigated the process of obtaining informed consent in clinical and public health research. The method of the study utilized interviews, in which research participants were asked a series of questions after they had been through informed consent procedures. 600 participants were interviewed, and the results show that 5.9% believed that they were not given enough information before deciding to participate. Only 5.7% of the participants said that they had not signed a consent form before making the decision to participate. Interestingly, 33.7% reported that they were not aware of their power to withdraw from participation …show more content…
The study shows that although the majority of participants believed they were given sufficient information before deciding to participate, a large portion was unaware of the withdrawal power. Therefore, the participants were not fully informed. This topic relates to the theme present in The Immortal Life of Henrietta Lacks, in which a woman named Henrietta had her cells taken and used in research without her agreement. Although her cells produced extreme profits and ground-breaking research, Henrietta’s family was never compensated. Despite her family’s multiple health issues , they could not even afford health insurance. The study suggests that although it is still flawed to a certain extent, the informed consent process has substantially improved. Only 5.9% of the participants believed that they were not given enough information before deciding to participate. In Henrietta’s time, it was legal for doctors to take her cells and use them for research without her knowledge. Today, consent is required if the donor’s name is attached. However, the process is certainly not perfect. Many patients do not fully understand what exactly it is they’re signing. Nonetheless, physicians must explain to patients to the best of their abilities. Informed consent is a vital process. Although most people are willing to help with research that will positively contribute to the future of medicine, a majority would be appalled to discover
The Immortal Life Of Henrietta Lacks By Rebecca Skloot
1695 Words | 7 PagesPatients have no rights to samples taken from them as they become biological waste. Yet it is not necessary for doctors to obtain consent to store the same tissues that are supposed to be biological waste and use the samples for research. The lines in bioethics are blurred and there should be stricter guidelines on how research should be conducted and exactly who should benefit from. I believe the tissue donor should receive some sort of compensation because it not for said cells, the research would not exist. As with HeLa cells, without Henrietta Lacks, there would be no HeLa cells nor any
The Immortal Life Of Henrietta Lacks By Rebecca Skloot
419 Words | 2 PagesIn her nonfiction piece The Immortal Life of Henrietta Lacks, Rebecca Skloot explores the issue of patient compensation. Her intertwining of court cases, expert opinions from the medical community and examples like Ted Slavin. Skloot advocates for both ethical practice and scientific advancement in the medical field. Fully inform the patient this includes letting the patient know if they have unique tissues or what they are studying or testing for in the tissues. Have the patient sign a consent form when they are lucid.
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Medical Ethics In The Immortal Life Of Henrietta Lacks
837 Words | 4 PagesDeborah Lacks, eldest daughter of Henrietta Lacks, emphasizes the actuality that there needs to be a certain standard in medical ethics to protect one’s basic human rights, “Everybody knew black people were disappearing cause Hopkins was experimenting on them!” (169). Skloot implies to the reader that basic human rights were compromised because of the lack of clearly stated medical ethics. Thereby patients undergo unethical experimentation that can be harmful to them because medical ethics are not clearly stated and the doctors have found mischievous ways to perform unethical experiments. Thereby black people are disappearing because doctors are more worried about themselves than their patients thus allowing them to pass away when they are able to be saved.
Argumentative Essay On Henrietta Lacks
239 Words | 1 PagesHenrietta Lacks was a black tobacco farmer from the south who, in 1950, at the age of 30, she was diagnosed with aggressive cervical cancer. Lacks went to John’s Hopkins medical center for treatment for her cancer. In April of 1951, she underwent surgery to remove the larger tumor on her cervix. Henrietta Lacks, died three days following the surgery. Even though Henrietta Lacks died, her cells from the tumor have lived on and have made a major impact on the biomedical community.
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284 Words | 2 PagesFaden and Beauchamp discuss two definitions of informed consent, which are labeled sense1 and sense2. First, sense1 informed consent is defined as “autonomous authorization”. (Vaughn, p. 191). The key aspect of sense1 is that the patient has the autonomy to consent, or refuse consent. Faden and Beauchamp state four defining characteristics of sense1 informed consent: complete understanding of the consent, individual desire for the consent, intent to consent, and authorizing consent.
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700 Words | 3 PagesWhat are the specific issues raised in the book—legally and ethically? Think about the 1980s John Moore case: the appeal court decision and its reversal by the California Supreme Court. Issues that raised in the book are race issues, the legality of taking adventage of patients who’s family aren’t able to fight for the rights and benefit of their cells. According to California supreme court, Under the duty to obtain informed consent, “a doctor must disclose his intent in using a patient for research and economic gain.” 6.
Henrietta Lacks Without Her Consent Essay
663 Words | 3 Pages“Was It Illegal for Doctors to Take Cells from Henrietta Lacks Without her Consent?” How can you take cells from a human being and treat them as clothes that you’re just selling. In The Immortal Life of Henrietta Lacks, Rebecca Skloot told the story of the woman behind the famous cell line and the fact that her family did not know about Lacks’ immortal cells until more than 20 years after her death. Some believe it was legal to take Mrs. Lacks cells, while others disagree and say it’s illegal. It was definitely illegal for the doctors and scientist to take Henrietta’s cells without her consent.
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Immortal Life Of Henrietta Lacks Essay
919 Words | 4 PagesIn the case of Henrietta Lacks and her family, the mistreatment of doctors and lack of informed consent defined nearly 60 years of the family’s history. Henrietta Lacks and her children had little to no information about serious medical procedures and the use of Henrietta’s cells in research. Henrietta’s cells launched a multibillion-dollar industry without her consent and doctors even took advantage of her children’s lack of education to continue their research without questions: “[Doctor] did not explain why he was having someone draw blood from Deborah… he wrote a phone number and told her to use it for making more appointments to give more blood” (188). Deborah did not have the knowledge to understand the demands or requests the doctors made of her, and the doctors did not inform her explicitly.
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1024 Words | 5 PagesConsent is patients’ rights because they have right to know what is happening to their life which is fundamental value in professional practice (Department of Health (DH), 2001). Dougherty and Lister (2015) state that consent is a patient’s rights to refuse or to accept a treatment. However, Dimond (2010) said that consent is a voluntarily decision which can be given orally, verbally, written or implied for example if you ask a patient to take their blood pressure and they offer their arm. Eyal (2012) also states that consent promote trust in medical procedures that people may seek and comply with medical advice and participate in medical research. Bok (2013) argues that there are problems with the trust-promoting as many patients give consent despite being to some extent distrustful.
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