Lupus Sociology
Perception and Coping among Women Living with Lupus
In a qualitative study done by Baker JA and Wiginton K, a convenience sample of thirty eight women volunteers from a Lupus support group were interviewed and also given questionnaires based on their perception and management of Lupus. The goal of this study was to identify the different representations of Lupus made by women and to evaluate the impact the illness has on their self management. Baker and Wiginton came to the conclusion that the more the women knew and understand Lupus, the more they were able to manage living their lives with Lupus.
The role of patient attachment and working alliance on patient adherence, satisfaction, and health-related quality of life in lupus treatment
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These women were recruited from online Lupus support groups and are told to submit their experiences of when they were first diagnosed. There was also an analysis based on a demographic questionnaire, medication inventory, and treatment appointments. Meldenson came to the conclusion that during the liminal stage of Lupus, women are not given an exact diagnosis which causes confusion, lack of support, and depression amongst the women.
Managing a Medically and Socially Complex Life: Women Living With Lupus
Lupus patients have a difficult time with incorporating Lupus into their lives. Cindy Meldenson’s qualitative study was used to observe how women manage living with Lupus. Meldenson uses the ethnographic approach in which she took two different samples and compared how they managed with living with Lupus. Sample one was drawn from the local community and were diagnosed within a year of symptom recognition. Sample two were drawn from the internet and described a frustrating process of diagnosis. Each sample went through many life changes after being diagnosed and had to learn how to cope with it.
Confidence in Medical Care Linked to Depression in Lupus
Summary Of Am I Mr Krummel
416 Words | 2 PagesIn “Am I MS?” Miriamne Ara Krummel talks about her personal journey she endured dealing with multiple sclerosis. Krummel further explains at the end how she was finally able to accept her diagnosis and to embrace it. She finds that it’s important to be open about the disease. She believes that, “it might be helpful if more people would talk about death and dying as an intrinsic part of life” (76-77).When she was first diagnosed, she had a difficult time coping with MS.
Xacc/280 Week 6 Checkpoint
354 Words | 2 PagesInterestingly, social function was the most frequently selected domain with pain intensity, although participants did not consider social health as an important area as physical health, which was obviously supported by the results of the open-ended question and PROMIS cards parts of the interview. Social function was merged from two PROMIS domains; “ability to participate in social roles and activities” and “satisfaction with social roles and activities”. These two domains were combined because the participants had difficulty differentiating between them and therefore they only selected one of them during the interview. A systematic review showed that the social component of life was important for individuals with LBP 55. In addition, WHO reported that LBP affects the work performance among individuals with LBP and it considered a leading cause of work absence and loss 53.
What Is Barbara Lazear Ascher's Trauma Of Compassion
673 Words | 3 PagesShe focuses on the emotions that come, and how they provoke the emotions that are presented. Out west, Nancy Mairs shares her compelling story of the difficulties she must face living with Multiple Sclerosis. Her trauma is impactful on many people. After coming to a standstill with her condition herself, she struggles to understand the way her disease affects those close to her. Barbara Lazear Ascher and Nancy Mairs illustrate how pity or fear lead to remorse before progressing to compassion, justifying compassion as a tertiary emotion.
Mean Baby Thesis
578 Words | 3 PagesBlair describes the frustration of self-medicating and not receiving the support she needed from others who dismissed her pain as "normal". She talks about how she suffered in silence and felt alone. This resonated with me and reminded me of my own struggles with invisible illnesses. Like Blair, I've been told by others that my pain is "all in my head" and it's been a struggle to get the support I need. Blair's story also highlights the stigma that can come with a diagnosis.
Personal Narrative: Hashimoto's Disease
1110 Words | 5 PagesReason One: While I am pretty candid about some aspects of my life, I am pretty quiet about others. Therefore, most people, including some family members, do not know that I have an auto-immune disorder called Hashimoto 's Disease. This autoimmune disorder means that my body attacks my thyroid causing symptoms of low thyroid (weight gain, pain in arms and legs, inability to regulate temperature, etc.). I knew something was wrong 21 years ago, but could not get most doctors to listen to me. It was only two years ago
Great Depression Research Paper
1990 Words | 8 PagesI should not be in the real world. I have been diagnosed with Melancholia, a fancy alternative to saying “Depression”, which in turn is a fancy way of encompassing an almost indescribable, soul-crushing composition of mental adversary. The former can be seen as a bite-sized term for this diverse complexity. It is easier to understand that the brain, like any other organ, can severely malfunction. In many cases, this can leave one with nagging paranoia, self-contempt, hopelessness, or a multitude of self-destructive habits bundled into a disorienting ellipse of self-blame; depression leaves you feeling horrible about feeling horrible.
Depression In Mexican Culture
736 Words | 3 PagesAccepting a Depression diagnosis can be challenging when our patient doesn’t have the social support from family and
Nancy Mairs On Being A Cripple Essay
807 Words | 4 PagesThis quote shows that even though Mairs sometimes has difficulty accepting her illness, she knows that there is a growing acceptance of people who must deal with the difficulties that she faces. This ultimately lends a hopeful and positive tone to an otherwise serious and depressing section of her essay. This contrast in tone, but general feeling of hope is key to the type of emotions that Nancy Mairs is trying to educate her readers about. Mair is successful in using multiple rhetorical strategies to connect with the reader.
Conundrum For Caregivers
621 Words | 3 PagesMaintaining hope is key for long-term survivors of diseases such as HIV infection and breast cancer. Healthy coping, however, differs from the common societal notion of “positive thinking.” Having the capacity to tolerate and express concerns and emotions not just the ability to put anxieties aside, and additionally, discussing these as well as uncertainties and fears, losses and sadness that usually accompany severe illness is generally
Persuasive Essay On Fibromyalgia
1057 Words | 5 PagesMY PRIVATE BATTLE Living with chronic illness and pain is something that isn’t easily understood by people who are not going through the same thing. Moreover, the effects of illness are an emotional and personal daily battle. All of us with Fibromyalgia are not the same!! Not one of us has the exact same symptoms. We have a lot of the same, some are worse, some are less, but no two are exactly alike!
Person Centred Care
2077 Words | 9 PagesDemonstrating ‘respect for patients’ values, preferences and expressed needs,’ is one of the eight dimensions of person centred care outlined by the Picker Institute (ref). Morgan and Yoder (2012) described ‘respectful care’ as being an attribute of person centred and while the author does not disagree with this idea of ‘respectful care’ being inherent to person centred care, the author believes that Slater (2006) more accurately describes dignity and respect as being antecedents of person centred care. These antecedents drive respect of personal values, individual needs and decisions, a consequence of which is an improved therapeutic relationship and health outcomes. The author considers this view of dignity, compassion and respect as antecedents
Summary Of Susanna Kaysen's Girl, Interrupted
1871 Words | 8 PagesIllness in women has always been a great mystery. When illness is studied, it is studied in men. With male symptoms, male bodies, and male drugs to fix the problem. The medical field has done very little to explore the ways that various illnesses both mental and physical effect women. They often do not know how to treat these illnesses when they do show up in women.
Collaborative Person-Centred Care Essay
1225 Words | 5 PagesDaniel & Rosenstein (2008) define collaboration in health care as “health care professionals assuming complementary roles and cooperatively working together, sharing responsibility for problem-solving and making decisions to formulate and carry out plans for patient care.” Finkleman (2006, cited in Ndoro, 2014) states there are many advantages of working in multidisciplinary teams, such as professionals having a greater understanding of one another’s job roles. This permits greater communication between each other. Working within a multidisciplinary team enables collaborative working and improves patient care. Although collaborative person-centred care is vital, it needs improvement.
Group Therapy: Involuntary Membership
1024 Words | 5 PagesEthical Issues in Group Therapy: Involuntary Membership Group psychotherapy is often voluntary, but sometimes members have been mandated by the court or other authorities to participate. Participation is usually easier for voluntary members since it doesn’t have the added psychological barrier of being forced to attend. For this reason, mandated members have difficulty with participation and are sometimes perceived as reluctant (Roth, 2005). It is important that members understand the dynamics within the group and what goals and processes are involved in being a part of that group. This essay will focus on the strategies of assisting group leaders and group members in engaging in the process of psychotherapy by providing informed consent, learning
Leventhal's Self-Regulatory Model (SRM)
941 Words | 4 PagesPatients must continuously adjust to the threat to their own identity: at first, when they find out the diagnosis, and later, to the treatment, to various physical symptoms and to the emotional distress. This adjustment is considered by the Common Sense Model of Self-Regulation, where the patient with cancer is considered to be actively seeking and processing the information about the disease, building his/her own cognitive and emotional representations with regard to the disease and finally selecting and applying those coping procedures that will help him/her face the threat of disease [14,15]. If the adjustment efforts that focus on the problem or on the emotion are inadequate or inappropriate, individuals will experience fear or worry, according to Leventhal’s Common Sense Model of Self-Regulation, which originally did not include worry and risk perception; these concepts were later included in the extended versions of the self-regulation framework
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