The lifetime of Henrietta Lacks is a deterrent tale that reflects the intrinsic contradiction between the known purpose of medical research to provide profit to humans and the disturbing reality of deliberate profiteering in advancements in science. Rebecca Skloot was not the first to investigate recognized racism and ethics in medicine and this exposition should not be taken as a review of her innovative research for The Immortal Life of Henrietta Lacks. Yet the book focuses on medical institutions which have successfully adopted the strategies which have been caught engaging in bad practices over the years. Matthew C. Nisbet and Declan Fahy in "Bioethics in Popular Science: Evaluating the Media Impact of the Immortal Life of Henrietta Lacks …show more content…
From the Henrietta situation it seems that more change gave been implemented to fix this major issue. But with every situation, there are loopholes that are evident in these consents. Hoeyer and Hogle state “Absence of proper consent is currently being construed as an ‘intolerable.’ Policies enforcing the consent requirement assume that there is a universal subject, that all subjects weigh information and make “informed” choices similarly, and that they “voluntarily” participate with similar expectations” (352). The question of ethics that is raised is what rights do individuals have over their own blood, tissue and cells when it is being used in research. That argument that most pose is that Hela cells are and continue to help scientists discover numerous amounts of treatments to ailments. In this case, the ethics behind major research is over ridden by the desire for knowledge and the next advancements. Jennings and Dawson state “Bioethics has the potential to offer society a keener insight and perception of what is ethically at stake in controversies concerning health, science, and society. This insight is what we shall refer to as a “moral imagination,” by which we do not mean make-believe or fantasy but, rather, the capacity to take a critical distance from the given, to think reality otherwise” (35). There are always facts that are fabricated to make up for any mistake or issue that might be prevailing. …show more content…
The attitudes towards blacks was very different in the 1950’s in the everyday life and every aspect of life to be realistic. Skloot states “But today when people talk about history of Hopkin's relationship with the black community, the story many of them hold up as the worst offense is that of Henrietta Lacks-- a black woman whose body, they say, was exploited by white scientists” (168). Hospitals were segregated but luckily John Hopkins Hospital. In the research world, blacks were used as guinea pigs for research studies. A prominent example of blacks being taken advantage of for medical research was the Tuskegee syphilis study in which Skloot describes: The Tuskegee syphilis study -- they recruited hundreds of African-American men with syphilis, then watched them die slow, painful, and preventable deaths, even after they realized penicillin could cure them. The research subjects didn't ask questions. They were poor and uneducated, and the researchers offered incentives: free physical exams, hot meals, and rides into town on clinic days, plus fifty-dollar burial stipends for their families when the men died
People did not know the truth about HeLa because Hopkins hospital hid the fact that they took living samples of Henrietta’s cells without consent. “-Add quote-“they did it to continue and advance in their research. From HeLa the scientific world was booming with questions. “–Add quote-“they asked questions such as where was HeLa from and who’s the patient was with the cells. Not to mention Hopkins did not release Henrietta name because they did not want people to find out who she really was.
An example from the book of applied research is injecting these malignant cells into the arms of sick and healthy patients (Skloot, 2010). Another reason for the use of her cells is because the growth of living cells has been unsuccessful prior to receiving the HeLa cells. It could be the lack of mitosis happening in the cell, and the cells have not been able to reproduce, and create copies of themselves. This is another reason, why the doctors have been keeping a close observation of Henrietta’s children, even making up excuses to collect their blood, and keeping everything a secret. This is important to research because you can have a higher risk of getting a disease through your family’s genes.
Sonali Sagar Block: 2B May 12th 2015 The Degradation of Morals and Ethics In the book, The Immortal Life of Henrietta Lacks the author Rebecca Skloot tells us about a non-fiction story of an African American women who is diagnosed with cervical cancer and how the medical community exploited her for use of her “immortal” cells. From then onwards the cells have been used for widespread medical advancement and research. There is no denying the good that has come from this as even the polio vaccine was developed from these HeLa cells. Moreover, it has also been aiding with finding a cure for cancer as well as assisting with further research on AIDS.
At this time, scientists investigating HeLa began using her husband and children in their research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the
After leaving the hospital, she went back to life as usual.” (Skloot 42) The issue of racial inequality in the medical field is further demonstrated by Henrietta’s cells being used to create a multi-billion dollar industry while her family never received any compensation. Even though HeLa cells were used in multiple scientific advancements, such as creating the polio vaccine, Henrietta’s family was still left in
Later, when Henrietta’s genome was published, it sparked up more drama, because this too was unethical. “That is private family information,” said Jeri Lacks-Whye, Lacks’s granddaughter. “It shouldn’t have been published without our consent” (The NY Times). I believe that the continued use of the HeLa cells would have been ethical if the scientists were given permission. “It was a big moment, a hopeful moment, sitting down with the family and bringing so many years of research without consent to an end” (NBC News).
It talks about the doctors wanting Henrietta’s relatives blood so they could map the human genome. I wonder what the Hela contamination was. How would her relatives blood samples become relevant to this theory? Also, John Moore had almost the same issue as Henrietta, having his cells taken for research without consent. He had signed a form, but the doctor completely misleads him to what it was for.
In the memoir, The Immortal Life of Henrietta Lacks, the author Rebecca Skloot reveals the life story of Henrietta Lacks and her cells’ revolutionary impact on the medical industry, while also raising concern about the greater underlying social issues consistent in Western medicine. The memoir follows the life of Henrietta Lacks, a black woman living with cancer in 1950s America, and the theft and utilization of her cells after her death. Skloot also writes about the ripple effects HeLa cells have on her family and the injustice they continue to face today. The memoir, The Immortal Life of Henrietta Lacks sheds light upon the importance of bioethics and informed consent while calling attention to the anti-feminist and racist past of post-colonial
However, some may disagree, “Dr. Hagiwara felt his family had an economic interest in the new cell line since he had proposed the project and his mother had provided the original cells” (Andrews). Stating that people’s body parts are apart of their personal property and need to be treated as so. That without the persons who donated the body parts there wouldn’t be any tissues or cells to help aid in research anyways. On the other hand, “Dr. Royston disagreed with Dr. Hagiwara, since he and his colleges had invented the procedure and created the parent cell line that made the production of human monoclonal antibodies possible” (Andrews). In the end, there will always be new and incurable diseases like that of my grandfather’s Parkinson’s.
There is a large controversy over ethics and the part that it plays in medicine. Where is the line between advancement and patient rights? The issue of tissue ownership and information ownerships is only one of the many problems that Henrietta and her family are stuck dealing with. But, before Rebekkah Skloot introduces the readers to Henrietta and her cells, Skloot opens with an epigraph from Elie Wiesel. By using Wiesel’s epigraph Skloot creates the tone for the rest of the novel.
They took them and didn’t ask.” This quote ties together much of the story behind the ethical issues surrounding these cells and the importance of informed consent, a privilege we now take for granted
Statistically, African American women in the United States suffer from complications or death 243 percent more than white women during maternity. This is a common occurrence that many women and children face, but shouldn’t have too. Rebecca Skloots book, The Immortal Life of Henrietta Lacks, is an example of the inequality shown to African-American women in the medical world. Specifically, the unequal medical care Henrietta Lacks received, which many other black women experienced. In her book, Skloot suggests that African-American women suffer from psychological effects after receiving unequal medical care, do not receive equal medical treatment during maternity, and are more likely to die from maternal complications.
Racism in The Immortal Life of Henrietta Lacks Imagine your mother, sister, wife, or cousin was diagnosed with cervical cancer and you believed the doctors were doing everything in their power to help her. Only later you discovered her cells were used for research without consent and she was not properly informed of the risks of her treatment due to her race. This story happened and is told by Rebecca Skloot in The Immortal Life of Henrietta Lacks. Skloot use of narrative and her writing style enhances the understanding of the story. Henrietta Lacks was a young black woman who was diagnosed with cervical cancer at John Hopkins Hospital.
The origination of HeLa cells, used in biomedical research for a potential cure for cancer, had made many ground breaking discoveries in science; all thanks to one woman, Mrs. Henrietta Lacks. The history of Mrs. Lacks’s contribution to these studies raised many ethical issues concerning healthcare practice. In the short film, The Way of All Flesh, we learn how these cells were revealed by direct violation of ethical principles. During the 1950s, matters regarding informed consent practices were in their beginning stages of implementation.
In the case of Henrietta Lacks and her family, the mistreatment of doctors and lack of informed consent defined nearly 60 years of the family’s history. Henrietta Lacks and her children had little to no information about serious medical procedures and the use of Henrietta’s cells in research. Henrietta’s cells launched a multibillion-dollar industry without her consent and doctors even took advantage of her children’s lack of education to continue their research without questions: “[Doctor] did not explain why he was having someone draw blood from Deborah… he wrote a phone number and told her to use it for making more appointments to give more blood” (188). Deborah did not have the knowledge to understand the demands or requests the doctors made of her, and the doctors did not inform her explicitly.