When Henrietta’s case is revealed to people, their first response is usually: “Wasn’t it illegal for doctors to take Henrietta’s cells without her knowledge and consent? Don’t doctors have to tell you when they use your cells in research?” Well...no. At least, not in the 1950s to the early 21st century. People are often confused on how they should feel about this situation, which is understandable. Scientists aren’t after your legs and organs, they’re just using tissue scraps you parted with voluntarily. Still, the tissues are a part of you, and someone taking a part of you appears to violate ownership, which most people have a strong sense of when it comes to their bodies. However, just having a feeling of ownership doesn’t help you out
Patients have no rights to samples taken from them as they become biological waste. Yet it is not necessary for doctors to obtain consent to store the same tissues that are supposed to be biological waste and use the samples for research. The lines in bioethics are blurred and there should be stricter guidelines on how research should be conducted and exactly who should benefit from. I believe the tissue donor should receive some sort of compensation because it not for said cells, the research would not exist. As with HeLa cells, without Henrietta Lacks, there would be no HeLa cells nor any
Henrietta Lacks John Moore was a leukemia patient that died at the age of 56 years old. He had his spleen removed because with the infection the doctor was worried that it was going to explode. Once his spleen was removed the tissue was then used in research by Dr. David Golde a researcher for UCLA (John Moors, 56; Sued to Share Profits from His Cells). John was never told about the research being done on his tissues, he was just asked by Dr. Golde to return to the UCLA medical center for follow up checkups, where doctors would take blood every time and still never mentioned anything about research to John.
In the Immortal Life of Henrietta Lacks by Rebecca Skloot, the author demonstrates the harsh realities that many African Americans faced in the medical and scientific field during the mid 20th century. The author shows the unjust practices of this time period through interviews with the Lacks family and medical professionals. These harsh realities are proven when Skloot talks to Henrietta’s family. Henrietta’s husband, Day, explains how they took samples from Henrietta’s body without consent when Skloot writes, “Day clenched his remaining three teeth. "I didn't sign no papers," he said.
“Participation by individuals capable of giving informed consent as subjects in medical research must be voluntary” (Ethics in Medical Research and Publication 2). This was a clear violation in ethics by taking Henrietta’s cells, but at the time racism was still alive and the doctors were a lot less ethical considering all the ethical violations in the medical field happening at this time. The HeLa cell line developed from her cells was estimated at a whopping 3 billion dollars, and none goes to the family. The family is struggling to afford their own medical care while companies are still profiting off their mother. Even with all this hardship put on the family some good has come out of this malicious act such as when HeLa cells were used to test vaccines for polio saving millions or when telomerase ,an enzyme used to fix DNA, allowed scientists to test anti-cancerous drugs that would have killed normal cells (Popular Science, pars.
Just about everyone was profiting from HeLa cells except her own family. Throughout the book we can follow the interesting stories of Henrietta’s children and the scientist who worked with HeLa cells. Many ethical questions were raised and we can engage in the argument that the author poses. Is consent from patients’ necessary to proceed with testing on patients who are unaware of the procedures being done on them?
The only problem is the patient never knew that he was going to take the cells and sell them to make profit. Since the doctor took it without him knowing it and since the patient never got any money from the cells it has caused huge debate on whether or not the cells are still property of the person after they leave your body. The court in this case ruled that the patient gets control over his cells and tissues whether they can use them or not (Skloot, 2010). Then the doctor appealed saying this that when they leave your body and are in the hands of the doctor then they own the right of your cells (ANNAS, 1990). This leads to me say that I feel that the cells are each patient’s property unless them give them to some else with consent.
Who was Henrietta Lacks? Henrietta Lacks was an African American woman. She was born in August 1, 1920 as Loretta Pleasant. Henrietta was born in Roanoke, Virginia.
Born in Roanoke, Virginia on August 1, 1920, Henrietta Lacks would one day unknowingly be the reason for one of the most important cell lines in medical research. Henrietta Lacks became the source of HeLa cells after her death on October 4, 1951 (aged 31), cells which were the first immortalized cell line in history; immortalized cells are cells that will reproduce indefinitely under specific conditions. While Henrietta’s cells were and continue to be used to treat many illnesses, there was never any consent given from Henrietta herself, or any of her family. To this day, no portion of the billions of dollars made from HeLa cells ever found it’s way to Henrietta’s family. The medical ethics in the 1950’s are very questionable in comparison
Since the 2010 release of Rebecca Skloot’s New York Times bestselling non-fiction book The Immortal Life of Henrietta Lacks, many people both in and outside the scientific community are at least aware of the story of Henrietta Lacks and HeLa cells . The almost-mythical tale of the immortal HeLa cell line, taken from Henrietta Lacks’s cancer-ridden cervix and grown in culture for more than sixty years now, has evolved and spread throughout the scientific and popular imaginary , surfacing in accounts of the miraculous power and possibility of scientific research and debates surrounding medical ethics . While HeLa was used to develop the polio vaccine, continues to be of use in the research of AIDS, leukemia, Parkinson’s disease, and a host of other medical conditions, and even sent up in the first space missions to test the conditions of human cells in zero gravity, the cell line also carries with it the history of the woman in whom it originated, the history of slavery and racism in America, and the entanglement of race, gender, class, and sexuality in the sciences.
Through her cells we see the impact it created in medical research and understand ethical issues that arose from this experience. I, as many others in the world, strive for an answer on how to stop cancer from occurring and curing it once and for all. 1951 in Baltimore, Henrietta Lacks was a beautiful 30-year-old mother of five children who went to the gynecologist because of spotting between monthly cycles. On examination a lesion was found on her cervix that was biopsied for pathology and found to be epidermoid carcinoma of the cervix, Stage I cancer. This was an interesting case because when Henrietta’s cancer cells were tested they weren’t like other cancer cells; they were aggressive and grew very rapidly.
In the 1950s the first ‘immortal’ human cells were grown from a cancerous tissue sample taken from Henrietta Lacks, a poor black woman, without her knowledge or consent. She had died shortly after, at the unfortunately early age of 31, of a severe case of cervical cancer. Henrietta had a list of ailments that included neurosyphilis, gonorrhea, and HPV the leading cause of her cervical cancer and, ultimately, her death. The hospital that had diagnosed her cancer, Johns Hopkins, had supposedly been one of the best hospitals in the country, but it participated in discriminatory and amoral research practices when treating African Americans. Not only taking taking Henrietta’s cells without her consent, but injecting them and other cancer cells into patients without their knowledge.
Lance Langel 11/18/14 P.8 Bibliography Fahy, D., & Nisbet, M. C. (2013). Bioethics in popular sciance: evaluating the medica impact of The Immortal Life of Henrietta Lacks in the biobank debate .Retrievedfrombiomedcentralhttp://www.biomedcentral.com/1472- 6939/14/1 Due to biobanks, there has been many bioethical concerns regarding, disclosure, ownership, privacy, control, and consent. As an opportunity to engage an audience about these ethical issues, bioethicists have used Rebecca Skloot's book "The Immortal Life of Henrietta Lacks" (Fahy & Nisbet, 2013). To engage the audience, researchers conducted an analysis of relevant articles and transcripts produced by organizations and publications in the U.S. and in other countries (Fahy & Nisbet,
Does saving the human race from extinction matter if you did not get permission to take the materials necessary? When an African American women had her cells stolen without her consent she had no knowledge as to how she was going to benefit the world, let alone the science industry. This woman is Henrietta Lacks. Her cells and her legacy will never be forgotten throughout the world. In The Immortal Life of Henrietta Lacks, Rebecca Skloot presents the scientific progression of HeLa cells with study cases, such as the study of viruses and the development of the polio vaccine, in order to prove to the reader that HeLa was beneficial towards science and was not illegal in any ethical way.
I do think that patients consent should be required, because I think everyone have the right to decide whether or not they want a part of their body used for research. And I think people should be compensated for their contribution to science and the public
The final violation of ethical principles, in the story of Henrietta Lacks, was the violation of justice. Without the contribution of Henrietta’s cells, many discoveries and vaccines, such as the vaccine that conquered Polio, would not have made their pivotal breakthroughs in biomedical research. Her direct and unknowingly, supportive contribution helped save many people’s lives all over the world. Unfortunately, her named did not receive the recognition it deserved, and her family never received any compensation for profits made from direct use of her