Where Do Limits Matter?
The Immortal Life of Henrietta Lacks is a biography, which describes the life of a woman whose cells reproduced even after her death. Rebecca Skloot the author of the book goes on a search to discover who Henrietta Lacks was and why no one knew the owner of the cells that saved countless lives for decades. Despite Rebecca Skloot finding Henrietta’s family and learning about their lives and history of their mother, the family was never aware of 〖HeLa〗^1 and what scientists were using her cells for until twenty years later. The information about HeLa cells brought great shock and distress to the family, which unfortunately was never completely resolved till this day. In the end of the book (Afterward), the author explains …show more content…
“In 1999, president Clinton’s National Bioethics Advisory Commission (NBAC) issued a report saying that federal oversight of tissue research is “inadequate” and “ambiguous”. It recommended specific changes that would ensure patients’ rights to control how their tissues were being used.” (page 327). Unfortunately, the changes were never made and scientists still have the ability to conduct research on one’s tissues without consent. The reason for why the changes were nullified remain unknown even to Wayne Grody an individual “who was in thick of the debate in the nineties, (for) why the congressional recommendations and NBAC report seemed to have vanished.”. Despite why the congressional recommendations suddenly disappeared, the scientific community is granted much sway over acquiring tissue which may well be considered unscrupulous. Even some of the leading scientist want people to have the ability to know and choose how their tissue is being used. “Ellen Wright Clayton, a physician who is director of the center for biomedical Ethics and Society at Vanderbilt University, says there needs to be a “very public conversation” about all of this …if the issue were stated that bluntly so people could really understand what’s happening and say there okay with it, that would make me more comfortable with what we’re currently doing.” (page 320). This quote indicates scientist are aware certain studies conducted may be contrary to one’s believes and that the general public should be informed of the research that will be conducted on an individual’s
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The origination of HeLa cells, used in biomedical research for a potential cure for cancer, had made many ground breaking discoveries in science; all thanks to one woman, Mrs. Henrietta Lacks. The history of Mrs. Lacks’s contribution to these studies raised many ethical issues concerning healthcare practice. In the short film, The Way of All Flesh, we learn how these cells were revealed by direct violation of ethical principles. During the 1950s, matters regarding informed consent practices were in their beginning stages of implementation.
I do think that patients consent should be required, because I think everyone have the right to decide whether or not they want a part of their body used for research. And I think people should be compensated for their contribution to science and the public
The story of Henrietta Lacks involves an extreme violation of privacy. The book describes and discusses issues related to access of personal information from medical records, use of tissue samples, informed consent, and privacy invasion. These are issues that have raised debate, and are of concerns to me as a social worker. Other significant issues in this book relate to a lack of respect for Henrietta Lacks and her family, as well as justice, race, and social class. Being a social worker and reading this book made me so upset.
It talks about the doctors wanting Henrietta’s relatives blood so they could map the human genome. I wonder what the Hela contamination was. How would her relatives blood samples become relevant to this theory? Also, John Moore had almost the same issue as Henrietta, having his cells taken for research without consent. He had signed a form, but the doctor completely misleads him to what it was for.
These cells have been used for many research experiments. According to the National Institute of Heath, “Hela cells have also served as the foundation for developing modern vaccines, including the polio vaccine; understanding viruses and other infectious agents; and devising new medical techniques, such as in vitro fertilization.”
One of the most fundamental trust relationships is between a patient and their doctor. Physicians have supposedly earned their trustworthy title because of their extended education and desire to help others. However, this perception is being shattered by physicians violating patients’ trust by not providing all the information needed for making a responsible decision for a person’s health and performing unimaginable procedures. “The Immortal Life of Henrietta Lacks” provides multiple examples of the unethical practice of doctors. When scientists do not recognize their subjects as human beings and their relationship results in an unbalanced power dynamic, their advantageous position often leads to the unethical treatments of subjects, especially
An essential part of modern society relied on trust, especially the trust of doctors and scientists. People had the right to make an informed decision about their bodies and body parts. People had a right to their body parts, both attached and cell samples collected by doctors. The actions that the medical professions made will continue to affect future generations in both positive and negative ways. In the contemporary biographical novel, the Immortal Life of Henrietta Lacks, Rebecca Skloot used logical opinions to argue about the importance of consent to reveal the lack of morality from those in the medical field which continues to persist today.
Scientists aren’t after your legs and organs, they’re just using tissue scraps you parted with voluntarily. Still, the tissues are a part of you, and someone taking a part of you appears to violate ownership, which most people have a strong sense of when it comes to their bodies. However, just having a feeling of ownership doesn’t help you out
The Showing of the HeLa Cells and the People Connected to Them By: Spencer Carroll Period: 3 Rebecca Skloot wrote The Immortal Life of Henrietta Lacks she used a method of writing called “show, don’t tell” this is a technique often employed in various kinds of texts to enable the reader to experience the story through action, words, thoughts, senses, and feelings rather than through the author's description. The goal is to allow readers to interpret significant details in the text. Skloot describes the different characters with memories from not only the perspective of the character but of those around them as well. There were three main characters in the book The Immortal Life of Henrietta Lacks.
This is known as the Institutional Review Board (IRB), which governs research ethics in studies involving human subjects in order to ensure no ethical violations would occur and the patients were protected. Unfortunately it took these 600 African-American men and their families to help create a review board in order to make sure patients rights in biological experiments such as this one are reviewed to confirm patient’s rights and ethical principals are being followed throughout human
Any study that involves subjects concerning human beings should be approved first from the ethics committee before being effected (Chiarelli & Cockburn, 2002). Further, if the paper ever sought for ethical approval is not being mentioned in any section of the article concerning its ethical issues. This is one of the pitfalls noticed at the beginning of the
Part 3. Ethics of Science When thinking about research, the majority of the people forget to take into consideration the ethical aspects and tend to look only at the final achievements and conclusions. More often, the media presents a “remarkable discovery” way before it has proven its authenticity and veridicity. Talking about Mr Hwang’s research on his stem cell line derived from a cloned human embryo, it has been scientifically proven that it is not a remarkable discovery as it was first presented but just fabricated data that violates some of the points of Resnik’s Ethics of Research list. There are few institutions that acknowledge Mr. Hwang’s article about his cell line called NT-1 (2004) as authentic and correct, but the majority
Animal testing has become a double-edged sword topic all around the world. Researchers believe that it is morally ethical to conduct extreme research procedures on animals when it is unethical to conduct on humans. Research is responsible for many medical breakthroughs and an important factor to the development of medical advances is the inclusion of animals in research. Medical research with the help of animal testing has prevented hepatitis B, measles, etc. (Karayiannis et al. 2004).
Experimental Surgery is one of the many things people debate about. The good things and both the bad things even out in this case. It can go from the surgery to being super successful to the surgery end up super illegal. Especially if it’s done on children with mental and physical disabilities. Even though something that is used is illegal it could tremendously help a child’s future with disabilities or not.
Imagine an enraged animal rights activist charging toward a scientist in a white lab coat, desperate to free the little mice that are being used as test subjects. Although comical, this scene may be quite accurate when describing the passion that animal lovers have when it comes to the touchy subject of animal testing. For centuries, animal testing has been used in the medical research field, however many are now beginning to question whether it is ethical. Millions of animals are killed per year due to animal testing, so is this practice worth banning? Animal testing is a controversial subject, with supporters pointing out the medical advances that have stemmed from animal research and animal rights activists declaring it cruel and immoral.