Dialogue with Spin cerebellar Ataxia Patient
Hong Kong Spinocerebellar Ataxia Association (HKSCAA) was established in in April 2007, it is designed specifically for spinocerebellar ataxia suffers and their families and it is a non-profit, self-help charity. HKSCAA upholds the spirit of mutual help and encourage members strive to live a glorious life.
It is great honor that with the assistance and support of HKSCAA, my teammates and I had an opportunity to interview the spinocerebellar patient, which is aimed at making us learn from educational and practical experiences, and develop the habit of critical reflection as a future health professional.
It took us over 1 hour to get to Tsuen Wan which is the place that the patient lives in. Ms. Cao
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We see that the support of family is so important that it can even replace the treatment to some extent. We know that there still remain plenty of problems that are beyond medical standers. We also become aware of the drawback of the medical system. That is lack of the quality of the treat process.
As is known to all, spinocerebellar ataxia is hard to cure and patients who suffer from this kind of disease will go through enormous pressure. In other words, this disease will affect the patients’ mental and physical health deadly. However the existing medical technology does not work on it well. Therefore, in other words, if nobody really cares about them, this disease will make patients suffer forever, which does not only result in a heavy burden of family but also a burden of society and medical organization.
Is it really able to be cured completely? Professors may say yes. However, after I interview this granny, I can’t agree the opinion of professors this time. Although its physical damage cannot be cured because of the limitation of technology, its mental damage can be cured through some factors. As is mentioned above, the patient finally becomes optimistic and the situation seems to be improved with the support of her
L.M. affiliates herself with Christian beliefs, she attends church regularly and describes her faith as a “saving grace through very trying times.” Both family members seek and are treated with Western medicine practices and they are both currently free of any diseases and/or ailments. L.M. describes health and wellness as “free from disease and good overall physical and mental wellbeing.” She also believes that to be truly well one must have faith in God and attend church regularly.
Imagine being a competitive athlete that can do almost anything and in a matter of seconds never being able to hug love ones or do the simple everyday tasks many take for granted. That’s how life is when a person is diagnosed with Amyotrophic Lateral Sclerosis (ALS) it’s a fatal disease that causes a person to lose complete control of their body and constantly need assistance. Having ALS also means having to watch the body deteriorate when the mind is perfectly aware of its own demise. Being diagnosed with Chronic Traumatic Encephalopathy (CTE) is a progressive degenerative disease caused by multiple severe concussions to the head.
Only until recently did I realize the severity of these problems, but nevertheless my family seemed desensitized to our condition – except for one person, my brother. Being the
The people are surprised to know that the people with senile dementia are labelled as lunatic in the nineteenth century. In addition, there were often the only institution which they had to accommodate is the lunatic asylum. The people with dementia are referred to as the person who lost his/her ability to reason and social skills. Dementia destroys the brain cells due to which sometimes behaviour of people with dementia may change.
Most people have never heard the words “spina bifida” in their life, but after today you will know what it is. Spina bifida is a neurological birth defect, where the backbone and the membranes around the spinal cord do not completely close, and even protrude out. This disorder can have no effect on a person or it can alter an individual’s life forever. I will begin by giving you some background information on the disorder and then I will tell about my sibling, who has this disorder. Spina bifida in Latin is translated as ‘split spine’.
Imagine you are nine years old and helping unpack groceries with your mother. In an instant everything changes. Your mom drops what she is holding and is now frozen on the ground. Her left side is paralyzed and there is nothing you can do except sit with her and wait for it to be over. You tell yourself it will be over soon, that the doctors will find a cure soon.
Once a person is in their world, it is very easy to accommodate their way of life. The most important key to delivering a successful medical care to our patient
There is no cure for Tourettes, but there is some treatments that can help with Tics that hurt. Many people with Tourettes syndrome have tics that do not get in the way of their living their daily life and, therefore, do not need any
Alzheimer’s is a deteriorating disorder that occurs due to nerve cells in the cerebral cortex (the portion of the brain that controls thinking) to increasingly shrink in size and weaken. This process occurring will interfere with every day messages needed to do daily activities. The cause of Alzheimer’s disease is indefinite, although there are several factors that have been associated such as a lack in the brain’s neurotransmitter materials, genetics, toxins from the environment, and viruses. Alzheimer’s is more than just loss of memory. It creates increasing changes to a patient’s personality, intelligence, motor function, sensation, and all other overall functions of the body.
( Marsa, 2015, pg. 1 ) Technology has improved since the first discovery of this disease. However, researchers are still unsure as to how the disease starts and takes hold of a person’s brain. Unlike dementia, memory loss is not the only result of this disease.
Through different interviews with Richard we are told of his battle to be diagnosed with the even rarer type of the condition Idiopathic late-onset Cerebellar Ataxia. His further battle with ‘normal’ life; of conversing with others, getting around and completing tasks others look at of easy to complete i.e. walking down stairs. There will also be filmed interviews with Dr. Tom Hayton, Consultant Neurologist. This will give us an up-to-date diagnosis of Richard’s condition and how he has found him as a patient. Leading to interviews with Richard’s wife Kathryn and his daughter Grace and their lives with a family member with Ataxia.
In “ How Doctor Die”, an article written by Ken Murray, is about the way to prolong the life of doctors and patients when they have terminal illness. In most cases, a doctor home went, closed their practice and never set foot in a hospital again. They want to have more time with family. Doctor is a person treat the desease and save the patients; however, when they have illness, they are also like other patients. They can meet a difficulty with their patients in treament,but they feel easy when they are a patient.
Neuromotor Impairments, under Individuals with Disabilities Education Act (IDEA), is one of the divisions that fall under the category of orthopedic impairment, others being degenerative diseases and musculoskeletal disorder (Gargiulo, 2015, p. 495). Neuromotor impairments are abnormalities of the central nervous system which includes brain and spinal cord or the ability of descending-nervous-tracts from the brain or spinal cord to innervate the muscles of the body. These impairments are congenital (present at or before birth) and severely impair coordination of limb movements, urinary control and proper alignment of the spinal cord and vertebrae. It is however quite possible that individuals with neuromotor impairments have additional impairments
Despite the fact that watching the slow deterioration has been agonising, I have also found it very captivating as to how such a complex organ can change to a degeneration condition. As a result of this personal experience, my desire to study neuroscience has increased. My obsession with Science has prompted me to study neuroscience and this
With this in mind, the process of getting treatment on such chronic diseases has led to increases on the cost of health care on individuals affected. Another factor that has led to the increase in cost of health care is the emerging of new procedures, drugs and technology that are coming up for treating diseases. When new procedures, drugs and technology are introduced to the health industry, there is usually monopoly of medical products in the market thus there being a demand for these products thus, an increase to the health care cost. One of the